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Mum thought illness was off milk in her tea - now she weighs 4st, had leave her wedding and has months to live

Mum thought illness was off milk in her tea - now she weighs 4st, had leave her wedding and has months to live
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Mum thought illness was off milk in her tea - now she weighs 4st, had leave her wedding and has months to live EXCLUSIVE: Emilie Cullum, 36, says she cannot accept that her three children will be left without their mother as she has one last go at prolonging her life after her weight plunged A mum who started vomiting after drinking a cup of tea and eating her breakfast cereal soon discovered that her stomach is completely broken as she desperately fights to stay alive. Emilie Cullum now...

Mum thought illness was off milk in her tea - now she weighs 4st, had leave her wedding and has months to live EXCLUSIVE: Emilie Cullum, 36, says she cannot accept that her three children will be left without their mother as she has one last go at prolonging her life after her weight plunged A mum who started vomiting after drinking a cup of tea and eating her breakfast cereal soon discovered that her stomach is completely broken as she desperately fights to stay alive. Emilie Cullum now weighs little over four stone and is so poorly that she had to cut her wedding short last week. She says she's starving to death, and after being diagnosed with Gastroparesis - a painful long-term condition where food passes through the stomach slower than it should - her only option is treatment in Thailand. The 36-year-old thought she had used expired milk when she suddenly started throwing up. After ten days of feeling terrible, she accepted it was something more serious before doctors told her she had Crohn’s disease. But the diagnosis was far more complicated and last February she booked a private consultation and discovered the harrowing truth. As her weight continued to plummet, her stomach became partially paralysed and she has now been put her on palliative care in an attempt to make the rest of her life as comfortable as possible. The health news came after Emilie was trying to rebuild her life after losing her son at just 12 weeks after he died in his sleep. The aesthetic clinic owner, from St Albans, Hertfordshire, says she feels like she is being left to die with the Total Parenteral Nutrition treatment, which delivers nutrients directly into the bloodstream, she needs is not available on the NHS in England - but would be entitled to it if she lived in Wales, Scotland or northern Ireland. Emilie is fundraising to secure the money needed to go to Asia in an attempt to give herself one final shot at staying alive to see kids Mia, 12, Taurus, 16, and Kai, 14 grow up. She spoke to the Mirror days after she was forced to abandon her wedding day early after just about managing to tie the knot with her golf teacher husband Kyle, 41. "It is the sad reality, but I just felt I had to cut the day short," she said. "I'm quite a hectic person and everyone will tell you, I over-stretched myself but we said our vows and that's the important thing. "The thinner I get, the sicker I get. That's the nature of my illness, and it's a struggle. I'm just trying to keep going and trying to stay alive. I don't want to leave my children, that is the most difficult thing. "I am unable to get the help I need from the NHS, I feel I've just been left to die really. I have been placed under palliative care as I am unable to gain weight and I don't feel like I am ready to go. I just want to fight." Emilie is still working to support her family and a friend has set up a fundraiser to fund private treatment that will help her spend more time with her children. She explained what is needed to get her stomach functioning again and says she has been left with no choice but to go to Thailand - despite the estimated £40,000 costs. "Total Parenteral Nutrition treatment is a bag of fluids and lipids is like fat, and has everything nutritional that you need to have in your body so you are fed. It is fed through a main arterial line, going from your arm into your heart. "The risk of having a central line is that you could get a blood clot - in Thailand they would put a cannula in me, and they will be giving me that bag for up to six hours. "As long as I'm not sent into shock, or I put on weight too quickly, they will take the cannula out after 24 hours and there's no risk of clot. I've got everything crossed. I just can't say goodbye to my family." She spoke about the moment her world changed as she called on the NHS to review the treatment they offer in England. "I was eating my breakfast and was really sick but didn't feel ill, didn't have a temperature or anything like that so thought maybe the milk was off, then had dinner and was sick again. Because I had been so violently sick for three days, I thought then I had broken my rib being sick. "When I saw the specialist he was like 'it's your stomach that's hurting not your rib'. It has been a very difficult few years for all of us, but I'm still here. I just want to give myself the chance of being around for my family for as long as possible."
Emilie Cullum (PERSON) Thailand (LOCATION) Crohn (PERSON) Emilie (PERSON) St Albans (LOCATION) Hertfordshire (LOCATION) the Total Parenteral Nutrition (ORG) NHS (ORG) England (LOCATION) Wales (LOCATION) Scotland (LOCATION) Ireland (LOCATION) Asia (LOCATION) Mia (PERSON) Kai (PERSON)
Originally published by Daily Mirror Read original →